Hemophilia Athletes

Here's a nice article about two boys who haven't let severe hemophilia slow them down. Its from the London Free Press in Ontario, Canada.

The opening graphs:

They play soccer and run long distance races. One's even a competitive
diver.

They ran in this year's Toronto Marathon as part of a family relay
team.

They act like normal 12-year-old kids.

Paul Travaglini and Emrik Burrows are about as normal as you can be, considering what they have to live with.

Both have severe hemophilia, a genetic disorder that results in the blood not clotting normally and making a bruise or cut a serious problem.

Read the whole thing

PEP Program News

Allison and I have been asked to be on the Steering Committee of the Parents Empowering Parents Program. We are very honored to continue working with this fantastic group of social workers, nurses and parents dedicated to bringing this program to the bleeding disorders community.

This month PEP went international with a Train the Trainers session in Australia (alas, Allison and I were not part of the team that went).